Good news and bad news this week. Bad first: We are skipping a week again because my white blood cell count (read immune system) is low. I will go back next week, hopefully with higher numbers to get my infusion. Also, I've gotten more side effects and the ones I already had have worsened. My good week wasn't as good as it has been.
Now the good news: based on the low WBC and the worsening side effects, I am transitioning from the highly toxic drug cocktail I have been getting to the one with two drugs and synthetic B12. I am discontinuing, for now, one of the drugs! YAY! I will have scans in January, so in 1 or 2 more treatments. If the tumor has shrunk, we will stay with the lower dosage. It is still an option, but only if needed.
I apologize for my rant from last time. God is working with me on this issue, which has become one of trust in Him and empathy for others. Please bear with me as my Heavenly Father and I work through my big feelings.
Thank you for all your prayers and keep them coming!! We are good in terms of need. So many of you have showered us with money or gift cards for food, or sweets! We appreciate that! We aren't going anywhere much with my compromised immune system and the raging spread of covid cases here, so gas is no issue. If you'd still like to give, the best gifts would be Amazon gift cards for movies, Walmart or Hobby Lobby cards for crafts, or to the GoFundMe campaign that has been pushed out to at least May. Link here: www.gofundme.com/f/help-suzy-get-to-hogwarts
Now the good news: based on the low WBC and the worsening side effects, I am transitioning from the highly toxic drug cocktail I have been getting to the one with two drugs and synthetic B12. I am discontinuing, for now, one of the drugs! YAY! I will have scans in January, so in 1 or 2 more treatments. If the tumor has shrunk, we will stay with the lower dosage. It is still an option, but only if needed.
I apologize for my rant from last time. God is working with me on this issue, which has become one of trust in Him and empathy for others. Please bear with me as my Heavenly Father and I work through my big feelings.
Thank you for all your prayers and keep them coming!! We are good in terms of need. So many of you have showered us with money or gift cards for food, or sweets! We appreciate that! We aren't going anywhere much with my compromised immune system and the raging spread of covid cases here, so gas is no issue. If you'd still like to give, the best gifts would be Amazon gift cards for movies, Walmart or Hobby Lobby cards for crafts, or to the GoFundMe campaign that has been pushed out to at least May. Link here: www.gofundme.com/f/help-suzy-get-to-hogwarts